A Family’s Journey with Fibular Hemimelia

Imagine this...

You and your significant other get the good news. You are expecting your first child. You call your friends and family. You start making plans for the changes to come.

You arrive at the doctor's office for what you think is a routine sonogram. And then you get the news...."Fibular hemimelia."

You first reaction would probably be "Fibular hemi..what? Simply put, fibular hemimelia is a condition in which the bone in the leg has not developed normally, leaving the limbs shorter than average. It is a serious condition and, in many cases, the recommendation is for amputation of the affected limb.

What would you do? How would you react?

This is exactly what happened to Tim and Marisa Haney from Orlando, Fla., when they received this news about their unborn daughter.

What followed was uncertainty, frustration, determination and finally their arrival at the International Center for Limb Lengthening, where they found hope for their daughter Emma's fibular hemimelia with the help of Dr. Shawn Standard.

Watch as Tim and Marisa share their fibular hemimelia journey:

To find out more about the ICLL, visit here.

- Noel Lloyd

To schedule an appointment with one of our highly trained physicians and find out why LifeBridge Health is Baltimore's premier health care organization, call 410-601-WELL.

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  • #DYK every 2-3 years women should receive a physical examination to screen for diseases; assess risk for future problems; discuss lifestyle habits; and keep vaccinations up to date. Be proactive about your health by staying on top of necessary screenings and health care visits. #WednesdayWisdom

    lifebridgehealth: "#DYK every 2-3 years women should receive a physical examination to screen for diseases; assess risk for future problems; discuss lifestyle habits; and keep vaccinations up to date. Be proactive about your health by staying on top of necessary screenings and health care visits. #WednesdayWisdom"
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  • Thank you, to the big-hearted "Get in the Game" campaign chairs at #NorthwestHospital. These members, Ericka Gray-Wylie, David Forbes, and Charles Williamson (not pictured), work hard to develop fun activities to not only increase participation in the employee giving campaign and raise funds, but to boost employee morale. #TeamLifeBridge

    lifebridgehealth: "Thank you, to the big-hearted "Get in the Game" campaign chairs at #NorthwestHospital. These members, Ericka Gray-Wylie, David Forbes, and Charles Williamson (not pictured), work hard to develop fun activities to not only increase participation in the employee giving campaign and raise funds, but to boost employee morale. #TeamLifeBridge"
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  • ‪#‎TBT Did you know that there’s a mini-museum inside ‪#‎SinaiHospital? Located behind the hospital’s cafeteria, the “Sinai Pride” #exhibit takes you back in time displaying everything from medical instruments to historic photos. Do you have a Sinai story? We’d love to hear it!

    lifebridgehealth: "‪#‎TBT Did you know that there’s a mini-museum inside ‪#‎SinaiHospital? Located behind the hospital’s cafeteria, the “Sinai Pride” #exhibit takes you back in time displaying everything from medical instruments to historic photos. Do you have a Sinai story? We’d love to hear it!"
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  • Meet the Committee Chairs at #Levindale, Amy Ward, Desiree Erdman, and John Ottena (not pictured here), who dedicate their time and hard work to organizing our annual 4-week employee giving campaign: "Get in the Game."

    lifebridgehealth: "Meet the Committee Chairs at #Levindale, Amy Ward, Desiree Erdman, and John Ottena (not pictured here), who dedicate their time and hard work to organizing our annual 4-week employee giving campaign: "Get in the Game.""
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  • The "Get in the Game" festivities continue as part of our #LifeBridgeHealth annual employee giving campaign. At #NorthwestHospital, staff members competed in a #Zumba Dance Off, while #CarrollHospital associates tested their #trivia knowledge, and the folks at #Levindale… well they just cooled off and enjoyed some delicious #icecream. Last year, our employees raised $202,000 to help local Maryland charities. Go #TeamLifeBridge!

    lifebridgehealth: "The "Get in the Game" festivities continue as part of our #LifeBridgeHealth annual employee giving campaign. At #NorthwestHospital, staff members competed in a #Zumba Dance Off, while #CarrollHospital associates tested their #trivia knowledge, and the folks at #Levindale… well they just cooled off and enjoyed some delicious #icecream. Last year, our employees raised $202,000 to help local Maryland charities. Go #TeamLifeBridge!"
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  • From the placement of the cornerstone in 1866 to the medical innovations of 2016, #SinaiHospital has experienced vast growth and improvements over the last 150 years. #TBT

    lifebridgehealth: "From the placement of the cornerstone in 1866 to the medical innovations of 2016, #SinaiHospital has experienced vast growth and improvements over the last 150 years. #TBT"
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  • As a proud sponsor of @wbaltv11's #BuddyCheck11, #LifeBridgeHealth is reminding you to call your buddy today. #BuddyCheck11 encourages you to check in with a buddy on the 11th of each month to remind each other to perform a breast self-exam.

    lifebridgehealth: "As a proud sponsor of @wbaltv11's #BuddyCheck11, #LifeBridgeHealth is reminding you to call your buddy today.  #BuddyCheck11 encourages you to check in with a buddy on the 11th of each month to remind each other to perform a breast self-exam."
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  • It’s National Farmer’s Market Week! Did you know that locally grown produce is fresher then what’s found at the supermarket? Freshness not only affects the taste of your food, but the nutritional value too. Stop by #CarrollHospital's Farmer's Market tomorrow for some delicious and health food items. (data credit: health fitness revolution) #WednesdayWisdom

    lifebridgehealth: "It’s National Farmer’s Market Week! Did you know that locally grown produce is fresher then what’s found at the supermarket? Freshness not only affects the taste of your food, but the nutritional value too. Stop by #CarrollHospital's Farmer's Market tomorrow for some delicious and health food items. (data credit: health fitness revolution) #WednesdayWisdom"
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  • Meet the members of #CarrollHospital’s Get in the Game committee. Over the last five months, this team has been working hard to plan for this year's annual giving campaign. The team’s goal: to raise $30,000 by Friday, August 12 to support the hospital’s programs and services. A big thank you to our dedicated staff for all that you do. #TeamLifeBridge

    lifebridgehealth: "Meet the members of #CarrollHospital’s Get in the Game committee. Over the last five months, this team has been working hard to plan for this year's annual giving campaign. The team’s goal: to raise $30,000 by Friday, August 12 to support the hospital’s programs and services. A big thank you to our dedicated staff for all that you do. #TeamLifeBridge"
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  • In honor of International Assistance Dog Week, we’d like to recognize our loyal companions who devote themselves to helping individuals enhance the quality of their lives. #IADW

    lifebridgehealth: "In honor of International Assistance Dog Week, we’d like to recognize our loyal companions who devote themselves to helping individuals enhance the quality of their lives. #IADW"
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