A Family’s Journey with Fibular Hemimelia

Imagine this...

You and your significant other get the good news. You are expecting your first child. You call your friends and family. You start making plans for the changes to come.

You arrive at the doctor's office for what you think is a routine sonogram. And then you get the news...."Fibular hemimelia."

You first reaction would probably be "Fibular hemi..what? Simply put, fibular hemimelia is a condition in which the bone in the leg has not developed normally, leaving the limbs shorter than average. It is a serious condition and, in many cases, the recommendation is for amputation of the affected limb.

What would you do? How would you react?

This is exactly what happened to Tim and Marisa Haney from Orlando, Fla., when they received this news about their unborn daughter.

What followed was uncertainty, frustration, determination and finally their arrival at the International Center for Limb Lengthening, where they found hope for their daughter Emma's fibular hemimelia with the help of Dr. Shawn Standard.

Watch as Tim and Marisa share their fibular hemimelia journey:

To find out more about the ICLL, visit here.

- Noel Lloyd

To schedule an appointment with one of our highly trained physicians and find out why LifeBridge Health is Baltimore's premier health care organization, call 410-601-WELL.

Print this entry

No Comments Yet.

Leave a comment

*

Facebook

Twitter

YouTube

LinkedId

Instagram

Follow Me on Instagram
  • The months of June, July and August average more auto accidents than any other time of year. Buckle seatbelts, reduce distractions, obey the speed limit, and NEVER drink and drive. #WednesdayWisdom

    lifebridgehealth: "The months of June, July and August average more auto accidents than any other time of year. Buckle seatbelts, reduce distractions, obey the speed limit, and NEVER drink and drive. #WednesdayWisdom"
    2
    1
  • #SinaiHospital's housekeeping team knows the importance of bringing a little fun into the workplace. To play off their creative skills, employees participated in a fun towel folding contest. Not only could team members showcase their knowledge, talents, and skills, but they could also bring smiles to the patients' faces. #TeamLifeBridge

    lifebridgehealth: "#SinaiHospital's housekeeping team knows the importance of bringing a little fun into the workplace. To play off their creative skills, employees participated in a  fun towel folding contest. Not only could team members  showcase their knowledge, talents, and skills, but they could also bring smiles to the patients' faces. #TeamLifeBridge"
    20
    1
  • To celebrate the kick-off of #LifeBridgeHealth's annual #employee giving campaign: "Get in the Game," staff across our organization had fun taking part in many activities including gift basket raffles and pie eating contests, all in support of the LifeBridge Health Fund and #UnitedWay.

    lifebridgehealth: "To celebrate the kick-off of #LifeBridgeHealth's annual #employee giving campaign: "Get in the Game," staff across our organization had fun taking part in many activities including gift basket raffles and pie eating contests, all in support of the LifeBridge Health Fund and #UnitedWay."
    20
    1
  • Emergency care has always been a staple service at #SinaiHospital. Today, our ER and Trauma Center are among the best in the state. Happy 150th anniversary, Sinai!

    lifebridgehealth: "Emergency care has always been a staple service at #SinaiHospital. Today, our ER and Trauma Center are among the best in the state. Happy 150th anniversary, Sinai!"
    13
    1
  • After an exhausting workday, exercising is probably the last thing you want to do. But getting your sweat on will actually energize you. According to a study published in Medicine and Science in Sports and Exercise, fatigue along with mood and depression improved after a single 30-minute, moderate intensity exercise session. #WednesdayWisdom

    lifebridgehealth: "After an exhausting workday, exercising is probably the last thing you want to do. But getting your sweat on will actually energize you. According to a study published in Medicine and Science in Sports and Exercise, fatigue along with mood and depression improved after a single 30-minute, moderate intensity exercise session. #WednesdayWisdom"
    13
    1
  • “Teamwork is our motto and that is how we function each day,” says Nurse Manager Michele Stiller of the Northwest Center for Wound Care and Hyperbarics. This center, which sees about 500 patients every month, helps patients with chronic non-healing wounds, such as pressure ulcers and complicated surgical wounds. #TeamLifeBridge

    lifebridgehealth: "“Teamwork is our motto and that is how we function each day,” says Nurse Manager Michele Stiller of the Northwest Center for Wound Care and Hyperbarics. This center, which sees about 500 patients every month, helps patients with chronic non-healing wounds, such as pressure ulcers and complicated surgical wounds. #TeamLifeBridge"
    19
    2
  • Congratulations to our four #SuperStar employees for June! Your hard work and commitment to #TeamLifeBridge is truly inspiring. Thank you for all that you do. (From top left to bottom right: Charles Nehwah of #SinaiHospital; Rolawn Patton of #NorthwestHospital; Rachel McDaniel of #Levindale; and Laura Lehman of #CarrollHospital)

    lifebridgehealth: "Congratulations to our four #SuperStar employees for June! Your hard work and commitment to #TeamLifeBridge is truly inspiring. Thank you for all that you do. (From top left to bottom right: Charles Nehwah of #SinaiHospital; Rolawn Patton of #NorthwestHospital; Rachel McDaniel of #Levindale; and Laura Lehman of #CarrollHospital)"
    8
    1
  • #TeamLifeBridge is proud of Thomas Glenn, a business development analyst for #LifeBridgeHealth who recently swam in the #US #olympictrials.Great job, Thomas! #TeamUSA #Rio2016

    lifebridgehealth: "#TeamLifeBridge is proud of Thomas Glenn, a business development analyst for #LifeBridgeHealth who recently swam in the #US #olympictrials.Great job, Thomas! #TeamUSA #Rio2016"
    23
    0
  • In 1895, #SinaiHospital became one of the first to devote an entire ward to treating #children. In the 120-plus years since then, we have offered exceptional #pediatric care to thousands of children in and around #Baltimore. Did you receive care at Sinai as a child? Share your story today! www.sinai150.com #TBT

    lifebridgehealth: "In 1895, #SinaiHospital became one of the first to devote an entire ward to treating #children. In the 120-plus years since then, we have offered exceptional #pediatric care to thousands of children in and around #Baltimore. Did you receive care at Sinai as a child? Share your story today! www.sinai150.com #TBT"
    22
    1
  • Did you know ... #rethinkyourdrink #sugar #healthyfood #healthyhabits #livehealthy #WednesdayWisdom #foodforthought Photo and data credit: @american_heart

    lifebridgehealth: "Did you know ... #rethinkyourdrink #sugar #healthyfood #healthyhabits #livehealthy #WednesdayWisdom #foodforthought 
Photo and data credit: @american_heart"
    18
    4