A Family’s Journey with Fibular Hemimelia

Imagine this...

You and your significant other get the good news. You are expecting your first child. You call your friends and family. You start making plans for the changes to come.

You arrive at the doctor's office for what you think is a routine sonogram. And then you get the news...."Fibular hemimelia."

You first reaction would probably be "Fibular hemi..what? Simply put, fibular hemimelia is a condition in which the bone in the leg has not developed normally, leaving the limbs shorter than average. It is a serious condition and, in many cases, the recommendation is for amputation of the affected limb.

What would you do? How would you react?

This is exactly what happened to Tim and Marisa Haney from Orlando, Fla., when they received this news about their unborn daughter.

What followed was uncertainty, frustration, determination and finally their arrival at the International Center for Limb Lengthening, where they found hope for their daughter Emma's fibular hemimelia with the help of Dr. Shawn Standard.

Watch as Tim and Marisa share their fibular hemimelia journey:

To find out more about the ICLL, visit here.

- Noel Lloyd

To schedule an appointment with one of our highly trained physicians and find out why LifeBridge Health is Baltimore's premier health care organization, call 410-601-WELL.

Print this entry

No Comments Yet.

Leave a comment

*

Facebook

Twitter

YouTube

LinkedId

Instagram

Follow Me on Instagram
  • As a sponsor of #Baltimore's 2017 Light City festival, #LifeBridgeHealth was thrilled to join city leaders, including Mayor Catherine Pugh, for today's announcement about the bigger, bright and bolder festival coming this spring. It was excited to hear about the amazing art, music and cultural events that are planned. #LightCity2017

    lifebridgehealth: "As a sponsor of #Baltimore's 2017 Light City festival, #LifeBridgeHealth was thrilled to join city leaders, including Mayor Catherine Pugh, for today's announcement about the bigger, bright and bolder festival coming this spring. It was excited to hear about the amazing art, music and cultural events that are planned. #LightCity2017"
    14
    0
  • Congratulations to our January #LifeBridgeHealth SuperStar #employees! These employees have been nominated by their coworkers for going above and beyond, every day. We appreciate all that you do! Thank you. #TeamLifeBridge From top left to bottom right: Jill Horn of #CarrollHospital; Catherine Oyedeji-Ojo of #SinaiHospital; Sylvester Campbell of #Levindale; and Donna Miller of #NorthwestHospital

    lifebridgehealth: "Congratulations to our January #LifeBridgeHealth SuperStar #employees! These employees have been nominated by their coworkers for going above and beyond, every day. We appreciate all that you do! Thank you. #TeamLifeBridge 
From top left to bottom right: Jill Horn of #CarrollHospital; Catherine Oyedeji-Ojo of #SinaiHospital; Sylvester Campbell of #Levindale; and Donna Miller of #NorthwestHospital"
    17
    0
  • #Maryland Comptroller Peter Franchot (second from left) stopped by #SinaiHospital today for a tour. He is seen here with Dr. Jonathan Ringo (Sinai Hospital interim chief operating officer), Neil Meltzer (LifeBridge Health president and CEO), Martha Nathanson (LifeBridge Health vice president of government and community development), George Mitchell (Neighborhoods United president) and Dr. Scott Brown (chief of the Department of Physical Medicine and Rehabilitation at Sinai). #LifeBridgeHealth

    lifebridgehealth: "#Maryland Comptroller Peter Franchot (second from left) stopped by #SinaiHospital today for a tour. He is seen here with Dr. Jonathan Ringo (Sinai Hospital interim chief operating officer), Neil Meltzer (LifeBridge Health president and CEO), Martha Nathanson (LifeBridge Health vice president of government and community development), George Mitchell (Neighborhoods United president) and Dr. Scott Brown (chief of the Department of Physical Medicine and Rehabilitation at Sinai). #LifeBridgeHealth"
    27
    0
  • This week in our #TeamLifeBridge spotlight, meet our Health Information Management Coders. This hardworking group of professionals is responsible for assigning codes that describe a patient’s care and diagnoses. These codes are then stored and used to support billing, quality reporting, and reimbursement programs. #LifeBridgeHealth #EmployeeAppreciation #Healthcare #Employees

    lifebridgehealth: "This week in our #TeamLifeBridge spotlight, meet our Health Information Management Coders. This hardworking group of professionals is responsible for assigning codes that describe a patient’s care and diagnoses. These codes are then stored and used to support billing, quality reporting, and reimbursement programs. #LifeBridgeHealth #EmployeeAppreciation #Healthcare #Employees"
    16
    3
  • Why was #WBALTV 11 talking to members of a local #motorcycle club at #NorthwestHospital? On January 11, tune into the 5:00 pm news and learn how this club is helping women with #breastcancer. This story is part of #BuddyCheck11, our partnership with WBAL that encourages you to check in with a buddy on the 11th of each month to remind each other to perform a breast #selfexam. #LifeBridgeHealth #Prevention #Cancer

    lifebridgehealth: "Why was #WBALTV 11 talking to members of a local #motorcycle club at #NorthwestHospital? On January 11, tune into the 5:00 pm news and learn how this club is helping women with #breastcancer. 
This story is part of #BuddyCheck11, our partnership with WBAL that encourages you to check in with a buddy on the 11th of each month to remind each other to perform a breast #selfexam.
#LifeBridgeHealth #Prevention #Cancer"
    20
    2
  • Shoveling #snow is a moderate-intensity #exercise that often results in injury when done incorrectly. To avoid injury this season it’s important to take the extra time to be prepared, and use proper form and equipment – your legs, back and heart will thank you! #Winter #InjuryPrevention #WednesdayWisdom

    lifebridgehealth: "Shoveling #snow is a moderate-intensity #exercise that often results in injury when done incorrectly. To avoid injury this season it’s important to take the extra time to be prepared, and use proper form and equipment – your legs, back and heart will thank you! #Winter #InjuryPrevention #WednesdayWisdom"
    16
    0
  • #LifeBridgeHealth wishes everyone a healthy and joyous 2017! #NewYear

    lifebridgehealth: "#LifeBridgeHealth wishes everyone a healthy and joyous 2017! #NewYear"
    17
    0
  • Let’s meet this week’s representatives of #TeamLifeBridge: our Telecom Department! With 15 operators and two team leads, the #LifeBridgeHealth Telecom Department is available 24/7 to provide a wealth of information to our customers. We appreciate all that you do and the 24/7 commitment you make to our organization. #LifeBridgeHealth #EmployeeAppreciation #EmployeeOfTheWeek #HealthCare #CustomerService #Spotlight #Appreciate #WorkHard

    lifebridgehealth: "Let’s meet this week’s representatives of #TeamLifeBridge: our Telecom Department! With 15 operators and two team leads, the #LifeBridgeHealth Telecom Department is available 24/7 to provide a wealth of information to our customers. We appreciate all that you do and the 24/7 commitment you make to our organization. #LifeBridgeHealth #EmployeeAppreciation #EmployeeOfTheWeek #HealthCare #CustomerService #Spotlight #Appreciate #WorkHard"
    19
    0
  • #LifeBridgeHealth teams are showing their caring this season! In the spirit of the #holidays, the entire Therapeutic Recreation Department of #Levindale decided to cancel their annual #giftexchange and instead bought #gifts for a local family in need! They say they hope their contributions bring some #holiday cheer to their adopted family! (not pictured: Amanda Bojan, Shellia Lavezzary) . . . #GiveBack #HolidaySpirit #CommunityOutreach

    lifebridgehealth: "#LifeBridgeHealth teams are showing their caring this season! In the spirit of the #holidays, the entire Therapeutic Recreation Department of #Levindale decided to cancel their annual #giftexchange and instead bought #gifts for a local family in need! They say they hope their contributions bring some #holiday cheer to their adopted family! (not pictured: Amanda Bojan, Shellia Lavezzary)
.
.
. 
#GiveBack #HolidaySpirit #CommunityOutreach"
    14
    0
  • Our #LifeBridgeHealth employees and patients had a great time getting into the holiday spirit at our annual facility #holiday parties. On behalf of our team, we'd like to wish everyone a very safe, happy, and healthy holiday season. . . . #SinaiHospital #NorthwestHospital #Levindale #Celebrate #HolidayParty #EmployeeParty #OfficeParty #Healthcare #Maryland #2016

    lifebridgehealth: "Our #LifeBridgeHealth employees and patients had a great time getting into the holiday spirit at our annual facility #holiday parties. On behalf of our team, we'd like to wish everyone a very safe, happy, and healthy holiday season.
.
.
.
#SinaiHospital #NorthwestHospital #Levindale #Celebrate #HolidayParty #EmployeeParty #OfficeParty #Healthcare #Maryland #2016"
    26
    0